Although it has been a long time since our last newsletter, I
am now pleased to be able to tell you that due to the
tremendous efforts and generosity of its supporters, committee
members and trustees, the Sophie Cameron Trust has achieved
many of its objectives.
Established in 2001, the Trust aimed to increase recognition
of Encephalitis Lethargica and support research into the
causes of this devastating illness. As those of you who follow
our website at www.thesophiecamerontrust.org.uk already know,
around £285,000 has been spent on research and other
activities related to EL. A national surveillance programme,
led by our Scientific Adviser, Professor Gavin Giovannoni, has
also been established. On a monthly basis every neurologist in
the UK is now asked about patients displaying symptoms of EL.
This is a major step forward in increasing awareness of EL
among the medical profession. The survey will provide detailed
information about the incidence of EL and the samples collated
will be useful in future research.
In addition, the Trust has supported the publication of the
first comprehensive study on EL to be produced for more than
half a century. Written by the American professor, Joel
Vilensky PhD, ‘Encephalitis Lethargica: During and After the
Epidemic’ has recently been published in hardback by Oxford
University Press and should be available from any bookshop or
Given all the above, we feel this is a good time to celebrate
what has been accomplished and wind up this small and
successful charity - although it is planned that the website
will continue to operate as an information source for some
years to come. Sophie was only seventeen when she fell ill
with EL, but she had hoped for a career in medicine and her
family feel that she would be very proud of the objectives the
Trust has realised.
Since the beginning, the Royal High School Bath, has been very
supportive of the Trust and last year, its outgoing Head,
James Graham-Brown, was instrumental in deciding that the new
performing arts centre should be named after Sophie. The
Sophie Cameron Performing Arts Centre will be officially
opened on 3rd May 2011 with a performance of the comedy play,
‘The Tamworth Two,’ written by James Graham-Brown, an
award-winning playwright, at 6.45 pm. A commemorative plaque
will be presented and we propose to use the occasion to
celebrate the achievements (and the coming to a timely end) of
The Sophie Cameron Trust. Seats will be limited, so if you
would like to attend, please contact our secretary, Sue
Howell, at Kelston House, College Road, Bath BA1 5RY, or on
01225 424224, or at email@example.com at your earliest
convenience to avoid disappointment.
I would like to take this opportunity to thank you all in
having supported the Sophie Cameron Trust in so many different
ways over the last ten years. For me it has been both a
pleasure and an honour to be so involved with such a worthy
charity and one where every penny has been so well spent.
With kind regards
Trustee and Chairman of the Fundraising Committee of SCT
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