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The Sophie Cameron Performing Arts Centre

The official opening of The Sophie Cameron Performing Arts Centre took place on Tuesday 3rd May 2011 at the Royal High School Bath. Guests enjoyed drinks and supper before being entertained by the comedy, The Tamworth Two, written by James Graham-Brown, the former Head of the Royal High School. The occasion provided an opportunity to celebrate Sophie’s life as well as the achievements of The Sophie Cameron Trust over the last ten years. Supporters of the Trust and members of the school community were welcomed by the school’s present Head, Becky Dougall, as well as James Graham-Brown, who paid tribute to Sophie and to the work of the Trust. Richard Wharton, the Trust Chairman, also spoke and a memorial plaque was presented to the school by Lydia Cameron, Sophie’s sister. The evening was a fitting commemoration to the sense of community that inspired the establishment of the Sophie Cameron Trust, a small charity that has accomplished so much, as is detailed elsewhere on this site.


Professor Vilensky’s book on EL, “Encephalitis Lethargica: During and After the Epidemic”, is published

Professor Joel Vilensky’s book, dedicated to Sophie Cameron and with a Prologue by SCT, as well as a preface by Dr Oliver Sacks, was published by Oxford University Press in New York at the end of 2010.


SCT Encephalitis lethargica surveillance and research at BICMS/QMUL: 2010 update

The EL surveillance program was set up in 2007, with the support of the Sophie Cameron Trust. The aim of this is to monitor all reported UK cases of EL, and to gain specific information on these cases. There are two arms to this study; the paediatric surveillance programme commenced in December 2007, and the adult surveillance programme commenced in April 2008.
As of October 2010, we have been informed of 13 confirmed EL cases in the UK, 9 of these were paediatric cases. Many of these are still awaiting informed consent and have not yet been entered on the database; in several cases informed consent has not been obtained and it has not been possible to obtain further observation. The number of confirmed cases is low, and the number of cases reported via the surveillance program included a number of retrospective cases; however, the initial diagnosis and reporting of EL cases (and therefore the number of cases reported) depends on the awareness of the condition.

A research programme to investigate the functional significance of ABGAs has been supported by a grant from the Sophie Cameron Trust. This currently supports the PhD project of Priya Dua, which started in October 2008. The main focus of Priya’s work is to establish a working model to study encephalitis lethargica as well as related post-streptococcal movement disorders. In particular this tests the role of streptococcal infections and the functional significance of anti-neuronal antibodies studied in the previous project. A progress report is attached.

David Holden & Priya Dua


Previous News Items:

1. Some thoughts on Joel Vilensky’s upcoming book about encephalitis lethargica.
2. SCT Encephalitis lethargica surveillance and research programme: update

3. Seminar by Professor Vilensky
4. SCT Encephalitis lethargica surveillance and research programme at BICMS/QMUL: 2009 update







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